Resumo

OSORIO GUZMAN, Maricela  e  GRANA, Silvina. Description of a Sample of Hemophilia Patients’ Family Structures: A Comparison Between Argentina and Mexico. Rev. Costarric. Psic [online]. 2016, vol.35, n.1, pp.8-22. ISSN 1659-2913.  http://dx.doi.org/10.22544/rcps.v35i01.01.

Chronic diseases such as hemophilia go beyond the containment of institutional health care systems and in volve not only a patient’s personal daily life but also their social networks. This situation deteriorates when the affected patient is a child. This paper aims to describe and compare the family structure of 50 families who have a child with hemophilia. Method: The participants were 50 parents of pediatric hemophilia pa tients of different types and severity. Twenty-seven Mexican families and 23 Argentine families answered the FACES III questionnaire for a transversal, exploratory, descriptive and co-relational study. Results: Among the Argentine families, the cohesion indices indicated that 86% of the families have a semi-related structure; regar ding adaptability, 88% showed a rigid structure. Comparing countries, no significant differences were found in the cohesion indexes. For adaptability, on the other hand, 100% of the Mexican families presented a rigid structure. Discussion: We believe that to recover a healthy balance and improve family life quality, integrated and sustained psychological intervention is required.

Palavras-chave : Hemophilia; Family; FACES III; Cohesion; Adaptability; Psychological vulnerability; Quality of life.

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